Not to repeat myself on the previous comment, but I thought the same thing and it had everything to do with control. As in, "I ain't got none and this is not the way I ran my life before..." I tried acupuncture, but the lady I went to (a) wanted to treat the toxins THAT I WAS VOLUNTARILY TAKING INTO MY SYSTEM as if it were somehow a bad thing, and (b) made me hurt, and I was already hurting enough (thank-you-very-much). I then decided to get into an exercise training program, one that I could extend past the treatments. This was a very good idea, and I can heartily recommend it for you.
(1) It takes your mind off the FOLFOX + side effects for a couple hours.
(2) It helps to keep whatever muscle you manage to retain through your treatments in shape - makes post-chemo recovery faster.
(3) It helps to make the internal plumbing work better, faster (though it has been 13 months since surgery and 5 months past end of chemo, I am still irregular - sorry if that's TMI!)
In any case, the boat may take on some water but it will not sink (MANY people are willing to bail if you need it and ask), and the land that you are moving away from is still there... you are floating to a different land (and that place is yours for the creating - MANY of those same people are anxiously waiting for you to arrive).
When my husband was in the military and would go on his six month deployments, people would be all "Oh, you're so strong, I don't know how you do it, blahblah compassionate noisescakes." The thing is, there is no choice. You put your head down and grind it out and one day you wake up and your life is back to normal.
In December 2007, they found a mass in my rectum. This is My Cancer Deployment.
33yo, primiparous, non-smoking, hypothyroid (dx 12.07), 8+ year pescatarian 1st diagnosed with rectal cancer via colonoscopy on 11.30.07. Despite very low CEA levels (1.0), dx confirmed 12.04.07 via biopsy. Tumor determined to be stage IIIb (T3/N1), 6-7cm from anal verge on 12.11.07 via world's most unpleasant ultrasound.
33 tx of chemorads (3,000mg Xeloda/d), pathology following LAR found no signs of adenoma or carcinoma AND none of the 11 nodes taken out were positive. FUCK YEAH.
Most recently, completed last of 8 treatments of FOLFOX on 8.16.08 and had ostomy reversal 9.5.08.
- 11/30: colonoscopy - 12/21: laproscopic ovary transposition - 12/26: 6 weeks/33 treatments of chemoradiation (last day 2/8) - 3/13: pre-op work-up and CTVP - 3/25: TRUS - 3/28: surgery (LAR) - 4/10: post-op appointment - 4/11: CT scan - 4/14: drain placement - 4/24: port placement - 4/24: 4+ months/8 chemo treatments: 1 2 3 4 5 6 7 8 - 9/4: CT scan, appts with both onc and surgeon - 9/5: ostomy takedown - commence bowel retraining - port gets taken out at some point...
Once goal of normal pooping is achieved (which may be further in the distance than any of us might think), join us in Iceland or Bermuda somewhere totally kewl for my FUCK CANCER Party
3 comments:
Not to repeat myself on the previous comment, but I thought the same thing and it had everything to do with control. As in, "I ain't got none and this is not the way I ran my life before..." I tried acupuncture, but the lady I went to (a) wanted to treat the toxins THAT I WAS VOLUNTARILY TAKING INTO MY SYSTEM as if it were somehow a bad thing, and (b) made me hurt, and I was already hurting enough (thank-you-very-much). I then decided to get into an exercise training program, one that I could extend past the treatments. This was a very good idea, and I can heartily recommend it for you.
(1) It takes your mind off the FOLFOX + side effects for a couple hours.
(2) It helps to keep whatever muscle you manage to retain through your treatments in shape - makes post-chemo recovery faster.
(3) It helps to make the internal plumbing work better, faster (though it has been 13 months since surgery and 5 months past end of chemo, I am still irregular - sorry if that's TMI!)
In any case, the boat may take on some water but it will not sink (MANY people are willing to bail if you need it and ask), and the land that you are moving away from is still there... you are floating to a different land (and that place is yours for the creating - MANY of those same people are anxiously waiting for you to arrive).
GOdd karma headed your way.
Oops. Meant to say "Good karma" not that unitelligible "GOdd karma" - whatever the hell that is.
Ummm. Unintelligible. Geez!
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